XLH UK

About XLH UK

XLH UK is a registered charity in England and Wales (registration number 1196811). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 70/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), XLH UK reported a total income of £13,252 and total expenditure of £15,824, a spending ratio of 119% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, XLH UK describes its activities as follows: XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care. Our analysis found no significant governance concerns for XLH UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 119.4% of income spent on charitable work