VHL UK/IRELAND
Registration #1160381 · Registered
http://vhl-uk-ireland.org/uk@vhl-uk-ireland.org
47 Tiln Lane RETFORD DN22 6SN
The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
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About VHL UK/IRELAND
VHL UK/IRELAND is a registered charity in England and Wales (registration number 1160381). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 70/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), VHL UK/IRELAND reported a total income of £20,076 and total expenditure of £38,915, a spending ratio of 194% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, VHL UK/IRELAND describes its activities as follows: The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site. Our analysis has identified 1 high-severity concern for this charity. We recommend reviewing the detailed flags below before donating. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown
Financial History
Latest spending ratio: 193.8% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £20,076 | £38,915 | 194% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026