Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.
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About TOFS
TOFS is a registered charity in England and Wales (registration number 327735). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 93/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2024), TOFS reported a total income of £222,536 and total expenditure of £189,716, a spending ratio of 85% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, TOFS describes its activities as follows: Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers. Our analysis found no significant governance concerns for TOFS. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.
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Financial History
Latest spending ratio: 85.3% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £222,536 | £189,716 | 85% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026