TIMOTHY SYNDROME ALLIANCE (TSA)

About TIMOTHY SYNDROME ALLIANCE (TSA)

TIMOTHY SYNDROME ALLIANCE (TSA) is a registered charity in England and Wales (registration number 1185523). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 90/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), TIMOTHY SYNDROME ALLIANCE (TSA) reported a total income of £205,304 and total expenditure of £128,996, a spending ratio of 63% suggesting a reasonable but not exceptional allocation to charitable activities. According to the Charity Commission register, TIMOTHY SYNDROME ALLIANCE (TSA) describes its activities as follows: Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment. Our analysis found no significant governance concerns for TIMOTHY SYNDROME ALLIANCE (TSA). No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 62.8% of income spent on charitable work