THE SCHINZEL-GIEDION SYNDROME FOUNDATION
Registration #1186327 · Registered
www.sgsfoundation.orgcontact@sgsfoundation.org
Lowfield Hall Poles Lane RH11 0PX
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
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About THE SCHINZEL-GIEDION SYNDROME FOUNDATION
THE SCHINZEL-GIEDION SYNDROME FOUNDATION is a registered charity in England and Wales (registration number 1186327). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 87/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), THE SCHINZEL-GIEDION SYNDROME FOUNDATION reported a total income of £68,345 and total expenditure of £64,185, a spending ratio of 94% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, THE SCHINZEL-GIEDION SYNDROME FOUNDATION describes its activities as follows: Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS. Our analysis found no significant governance concerns for THE SCHINZEL-GIEDION SYNDROME FOUNDATION. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 93.9% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £68,345 | £64,185 | 94% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026