THE OSTEOPETROSIS SUPPORT TRUST
Registration #1013052 · Registered
Www.osteopetrosis-support-trust.org.ukinfo@osteopetrosis-support-trust.org.uk
Blue Haze Notch Road GL7 7JU
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
Are you from THE OSTEOPETROSIS SUPPORT TRUST? Upgrade to a Pro Profile to add your logo, description, and a direct donate button.
About THE OSTEOPETROSIS SUPPORT TRUST
THE OSTEOPETROSIS SUPPORT TRUST is a registered charity in England and Wales (registration number 1013052). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 65/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. No financial data has been submitted to the Charity Commission for THE OSTEOPETROSIS SUPPORT TRUST, which may indicate the charity's income falls below the filing threshold, or that returns have not been submitted. According to the Charity Commission register, THE OSTEOPETROSIS SUPPORT TRUST describes its activities as follows: OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE. Our analysis identified 1 minor governance flag for THE OSTEOPETROSIS SUPPORT TRUST. No critical or high-severity concerns were found. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Want a detailed Benchmark Report for THE OSTEOPETROSIS SUPPORT TRUST?
Get a 4-page PDF report comparing this charity to similar organisations — including trustee count, spending ratio, income benchmarks, a live website audit, and personalised recommendations for improving visibility and score.
Request Free Report⚠️ Red Flags (1)
Score Breakdown
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026