THE EHLERS-DANLOS SUPPORT UK
Registration #1157027 · Registered
www.ehlers-danlos.orginfo@ehlers-danlos.org
International House 45-55 Commercial Street E1 6BD
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
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About THE EHLERS-DANLOS SUPPORT UK
THE EHLERS-DANLOS SUPPORT UK is a registered charity in England and Wales (registration number 1157027). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 95/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), THE EHLERS-DANLOS SUPPORT UK reported a total income of £434,770 and total expenditure of £392,489, a spending ratio of 90% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, THE EHLERS-DANLOS SUPPORT UK describes its activities as follows: Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE' Our analysis found no significant governance concerns for THE EHLERS-DANLOS SUPPORT UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 90.3% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £434,770 | £392,489 | 90% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026