THE EHLERS-DANLOS SOCIETY

About THE EHLERS-DANLOS SOCIETY

THE EHLERS-DANLOS SOCIETY is a registered charity in England and Wales (registration number 1180984). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 92/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), THE EHLERS-DANLOS SOCIETY reported a total income of £1,552,526 and total expenditure of £1,409,241, a spending ratio of 91% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, THE EHLERS-DANLOS SOCIETY describes its activities as follows: Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions. Our analysis found no significant governance concerns for THE EHLERS-DANLOS SOCIETY. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 90.8% of income spent on charitable work