THE ALKAPTONURIA SOCIETY LTD
Registration #1101052 · Registered
www.akusociety.orginfo@akusociety.org
66 DEVONSHIRE ROAD CAMBRIDGE CB1 2BL
The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.
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About THE ALKAPTONURIA SOCIETY LTD
THE ALKAPTONURIA SOCIETY LTD is a registered charity in England and Wales (registration number 1101052). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 95/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), THE ALKAPTONURIA SOCIETY LTD reported a total income of £367,726 and total expenditure of £294,929, a spending ratio of 80% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, THE ALKAPTONURIA SOCIETY LTD describes its activities as follows: The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria. Our analysis found no significant governance concerns for THE ALKAPTONURIA SOCIETY LTD. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 80.2% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £367,726 | £294,929 | 80% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026