Stickler Syndrome UK

About Stickler Syndrome UK

Stickler Syndrome UK is a registered charity in England and Wales (registration number 1060421). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 90/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2024), Stickler Syndrome UK reported a total income of £46,388 and total expenditure of £32,619, a spending ratio of 70% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, Stickler Syndrome UK describes its activities as follows: Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline. Our analysis found no significant governance concerns for Stickler Syndrome UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 70.3% of income spent on charitable work