SHWACHMAN DIAMOND SYNDROME UK
Registration #1164269 · Registered
http://www.sdsuk.orgSds@sdsuk.org
5 LINCOLN ROAD WASHINGBOROUGH LN4 1EQ
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
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About SHWACHMAN DIAMOND SYNDROME UK
SHWACHMAN DIAMOND SYNDROME UK is a registered charity in England and Wales (registration number 1164269). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 75/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2024), SHWACHMAN DIAMOND SYNDROME UK reported a total income of £54,760 and total expenditure of £65,637, a spending ratio of 120% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, SHWACHMAN DIAMOND SYNDROME UK describes its activities as follows: To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public. Our analysis found no significant governance concerns for SHWACHMAN DIAMOND SYNDROME UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 119.9% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £54,760 | £65,637 | 120% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026