PRIMARY CILIARY DYSKINESIA SUPPORT UK

Registration #1207340 · Registered

https://pcdsupport.org.uk/

chair@pcdsupport.org.uk

3 Laggan Road MAIDENHEAD SL6 7JY

57
out of 100
Good Standing

1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

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About PRIMARY CILIARY DYSKINESIA SUPPORT UK

PRIMARY CILIARY DYSKINESIA SUPPORT UK is a registered charity in England and Wales (registration number 1207340). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 57/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. According to the Charity Commission register, PRIMARY CILIARY DYSKINESIA SUPPORT UK describes its activities as follows: 1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care. Our analysis identified 1 minor governance flag for PRIMARY CILIARY DYSKINESIA SUPPORT UK. No critical or high-severity concerns were found. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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⚠️ Red Flags (1)

Low
Transparency: No financial data available

Score Breakdown

Trustees & Governance25 / 25
Financial Health0 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

YearIncomeSpendingRatio
2024£0£0-%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026