PRIMARY CILIARY DYSKINESIA SUPPORT UK

Registration #1049931 · Registered

www.pcdsupport.org.uk

chair@pcdsupport.org.uk

3 Laggan Road MAIDENHEAD SL6 7JY

85
out of 100
Platinum

1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

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About PRIMARY CILIARY DYSKINESIA SUPPORT UK

PRIMARY CILIARY DYSKINESIA SUPPORT UK is a registered charity in England and Wales (registration number 1049931). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 85/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2024), PRIMARY CILIARY DYSKINESIA SUPPORT UK reported a total income of £66,445 and total expenditure of £41,020, a spending ratio of 62% suggesting a reasonable but not exceptional allocation to charitable activities. According to the Charity Commission register, PRIMARY CILIARY DYSKINESIA SUPPORT UK describes its activities as follows: 1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care. Our analysis found no significant governance concerns for PRIMARY CILIARY DYSKINESIA SUPPORT UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown

Trustees & Governance20 / 25
Financial Health25 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 61.7% of income spent on charitable work

YearIncomeSpendingRatio
2024£66,445£41,02062%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026