PHELAN-MCDERMID SYNDROME FOUNDATION UK
Registration #1157423 · Registered
www.pmsf.org.ukinfo@pmsf.org.uk
99 HIGHGATE WEST HILL LONDON N6 6NR
Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation
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About PHELAN-MCDERMID SYNDROME FOUNDATION UK
PHELAN-MCDERMID SYNDROME FOUNDATION UK is a registered charity in England and Wales (registration number 1157423). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 70/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2024), PHELAN-MCDERMID SYNDROME FOUNDATION UK reported a total income of £63,259 and total expenditure of £103,738, a spending ratio of 164% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, PHELAN-MCDERMID SYNDROME FOUNDATION UK describes its activities as follows: Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation Our analysis has identified 1 high-severity concern for this charity. We recommend reviewing the detailed flags below before donating. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown
Financial History
Latest spending ratio: 164.0% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £63,259 | £103,738 | 164% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026