NOONAN SYNDROME ASSOCIATION
Registration #1140671 · Registered
www.noonansyndrome.org.ukinfo@noonansyndrome.org.uk
The Marshal Room 23-25 Old Row, Whalley Road BB7 9AZ
The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition
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About NOONAN SYNDROME ASSOCIATION
NOONAN SYNDROME ASSOCIATION is a registered charity in England and Wales (registration number 1140671). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 70/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), NOONAN SYNDROME ASSOCIATION reported a total income of £48,067 and total expenditure of £81,393, a spending ratio of 169% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, NOONAN SYNDROME ASSOCIATION describes its activities as follows: The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition Our analysis has identified 1 high-severity concern for this charity. We recommend reviewing the detailed flags below before donating. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown
Financial History
Latest spending ratio: 169.3% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £48,067 | £81,393 | 169% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026