MYOTONIC DYSTROPHY SUPPORT GROUP

Registration #1134499 · Registered

myotonicdystrophysupportgroup.org

CONTACT@MDSGUK.ORG

19-21 MAIN ROAD GEDLING NG4 3HQ

80
out of 100
Verified

To offer assistance, support and information to those people affected by Myotonic Dystrophy

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About MYOTONIC DYSTROPHY SUPPORT GROUP

MYOTONIC DYSTROPHY SUPPORT GROUP is a registered charity in England and Wales (registration number 1134499). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 80/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2024), MYOTONIC DYSTROPHY SUPPORT GROUP reported a total income of £336,393 and total expenditure of £128,492, a spending ratio of 38% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, MYOTONIC DYSTROPHY SUPPORT GROUP describes its activities as follows: To offer assistance, support and information to those people affected by Myotonic Dystrophy Our analysis found no significant governance concerns for MYOTONIC DYSTROPHY SUPPORT GROUP. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health15 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 38.2% of income spent on charitable work

YearIncomeSpendingRatio
2024£336,393£128,49238%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026