LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY

About LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY

LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY is a registered charity in England and Wales (registration number 1157206). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 70/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY reported a total income of £2,265 and total expenditure of £15,724, a spending ratio of 694% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY describes its activities as follows: We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics. Our analysis has identified 1 high-severity concern for this charity. We recommend reviewing the detailed flags below before donating. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 694.2% of income spent on charitable work