KLEEFSTRA SYNDROME UK
Registration #1208059 · Registered
www.kleefstrasyndrome.orgchair@kleefstrasyndrome.org
3-4 spire house waterside business park DE6 1DG
The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome
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About KLEEFSTRA SYNDROME UK
KLEEFSTRA SYNDROME UK is a registered charity in England and Wales (registration number 1208059). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 75/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), KLEEFSTRA SYNDROME UK reported a total income of £15,339 and total expenditure of £2,012, a spending ratio of 13% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, KLEEFSTRA SYNDROME UK describes its activities as follows: The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome Our analysis found no significant governance concerns for KLEEFSTRA SYNDROME UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 13.1% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £15,339 | £2,012 | 13% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026