KEEP ME BREATHING

About KEEP ME BREATHING

KEEP ME BREATHING is a registered charity in England and Wales (registration number 1201757). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 55/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. In its most recent reporting year (2025), KEEP ME BREATHING reported a total income of £134,340 and total expenditure of £174,625, a spending ratio of 130% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, KEEP ME BREATHING describes its activities as follows: Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS. Our analysis has identified 1 high-severity concern for this charity. We recommend reviewing the detailed flags below before donating. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 130.0% of income spent on charitable work