International XLH Alliance
Registration #1182964 · Registered
xlhalliance.orgcontact@xlhalliance.org
28 Tunbury Avenue CHATHAM ME5 9EJ
To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.
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About International XLH Alliance
International XLH Alliance is a registered charity in England and Wales (registration number 1182964). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 83/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2023), International XLH Alliance reported a total income of £82,141 and total expenditure of £66,295, a spending ratio of 81% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, International XLH Alliance describes its activities as follows: To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs. Our analysis found no significant governance concerns for International XLH Alliance. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 80.7% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2023 | £82,141 | £66,295 | 81% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026