INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY

About INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY

INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY is a registered charity in England and Wales (registration number 1175311). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 87/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY reported a total income of £447,821 and total expenditure of £368,458, a spending ratio of 82% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY describes its activities as follows: The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies. Our analysis found no significant governance concerns for INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 82.3% of income spent on charitable work