INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE

Registration #1150256 · Registered

www.inpda.org

info@inpda.org

Suite 2E NORTH SANDS BUSINESS CENTRE SR6 0QA

80
out of 100
Verified

A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.

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About INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE

INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE is a registered charity in England and Wales (registration number 1150256). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 80/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE reported a total income of £186,520 and total expenditure of £184,220, a spending ratio of 99% which is broadly in line with its income. According to the Charity Commission register, INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE describes its activities as follows: A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face. Our analysis found no significant governance concerns for INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown

Trustees & Governance20 / 25
Financial Health23 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 98.8% of income spent on charitable work

YearIncomeSpendingRatio
2025£186,520£184,22099%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026