GLOBAL PORPHYRIA ADVOCACY COALITION

Registration #1189694 · Registered

WWW.GPAC-PORPHYRIA.ORG

PRESIDENT@GPAC-PORPHYRIA.ORG

10 Ruskin Road New Costessey NR5 0LL

63
out of 100
Good Standing

The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.

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About GLOBAL PORPHYRIA ADVOCACY COALITION

GLOBAL PORPHYRIA ADVOCACY COALITION is a registered charity in England and Wales (registration number 1189694). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 63/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. In its most recent reporting year (2024), GLOBAL PORPHYRIA ADVOCACY COALITION reported a total income of £24,853 and total expenditure of £4,313, a spending ratio of 17% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, GLOBAL PORPHYRIA ADVOCACY COALITION describes its activities as follows: The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network. Our analysis found no significant governance concerns for GLOBAL PORPHYRIA ADVOCACY COALITION. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown

Trustees & Governance20 / 25
Financial Health15 / 25
Filing History & Transparency20 / 30
Regulatory Standing8 / 10

Financial History

Latest spending ratio: 17.4% of income spent on charitable work

YearIncomeSpendingRatio
2024£24,853£4,31317%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026