FOP FRIENDS
Registration #1147704 · Registered
www.fopfriends.cominfo@fopfriends.com
1 Cumberland Road Sale M33 3FR
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
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About FOP FRIENDS
FOP FRIENDS is a registered charity in England and Wales (registration number 1147704). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 85/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2024), FOP FRIENDS reported a total income of £83,617 and total expenditure of £58,322, a spending ratio of 70% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, FOP FRIENDS describes its activities as follows: FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure. Our analysis found no significant governance concerns for FOP FRIENDS. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 69.7% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £83,617 | £58,322 | 70% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026