FIBROUS DYSPLASIA SUPPORT SOCIETY
Registration #1175622 · Registered
www.fdssuk.org.ukenquire@fdssuk.org.uk
82 Nottingham Road Somercotes DE55 4LY
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
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About FIBROUS DYSPLASIA SUPPORT SOCIETY
FIBROUS DYSPLASIA SUPPORT SOCIETY is a registered charity in England and Wales (registration number 1175622). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 75/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), FIBROUS DYSPLASIA SUPPORT SOCIETY reported a total income of £14,123 and total expenditure of £1,357, a spending ratio of 10% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, FIBROUS DYSPLASIA SUPPORT SOCIETY describes its activities as follows: The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more. Our analysis found no significant governance concerns for FIBROUS DYSPLASIA SUPPORT SOCIETY. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 9.6% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £14,123 | £1,357 | 10% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026