DESMOID AID UK

Registration #1207309 · Registered

www.desmoidaiduk.com

info@desmoidaiduk.com

16 OCKENDEN ROAD BN17 7FH

62
out of 100
Good Standing

Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.

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About DESMOID AID UK

DESMOID AID UK is a registered charity in England and Wales (registration number 1207309). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 62/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. In its most recent reporting year (2025), DESMOID AID UK reported a total income of £8,134 and total expenditure of £963, a spending ratio of 12% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, DESMOID AID UK describes its activities as follows: Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment. Our analysis found no significant governance concerns for DESMOID AID UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown

Trustees & Governance20 / 25
Financial Health10 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 11.8% of income spent on charitable work

YearIncomeSpendingRatio
2025£8,134£96312%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026