CYSTINOSIS FOUNDATION OF THE UK
Registration #1074885 · Registered
www.cystinosis.org.ukadvice@cystinosis.org.uk
Cystinosis Foundation UK Unit 81304 B2 2NJ
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
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About CYSTINOSIS FOUNDATION OF THE UK
CYSTINOSIS FOUNDATION OF THE UK is a registered charity in England and Wales (registration number 1074885). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 83/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), CYSTINOSIS FOUNDATION OF THE UK reported a total income of £34,431 and total expenditure of £19,238, a spending ratio of 56% suggesting a reasonable but not exceptional allocation to charitable activities. According to the Charity Commission register, CYSTINOSIS FOUNDATION OF THE UK describes its activities as follows: To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general Our analysis found no significant governance concerns for CYSTINOSIS FOUNDATION OF THE UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 55.9% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £34,431 | £19,238 | 56% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026