CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)
Registration #1158672 · Registered
www.cure-eb.orgcontact@cure-eb.org
10 HUNTINGDON STREET LONDON N1 1BU
SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.
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About CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)
CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) is a registered charity in England and Wales (registration number 1158672). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 80/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2024), CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) reported a total income of £4,850,763 and total expenditure of £1,410,954, a spending ratio of 29% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) describes its activities as follows: SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB. Our analysis found no significant governance concerns for CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND). No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 29.1% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £4,850,763 | £1,410,954 | 29% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026