CURE DHDDS
Registration #1202643 · Registered
www.curedhdds.orgmel@curedhdds.org
6 PARK AVENUE LONDON SW14 8AT
The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease.
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About CURE DHDDS
CURE DHDDS is a registered charity in England and Wales (registration number 1202643). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 80/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2025), CURE DHDDS reported a total income of £131,495 and total expenditure of £69,071, a spending ratio of 53% suggesting a reasonable but not exceptional allocation to charitable activities. According to the Charity Commission register, CURE DHDDS describes its activities as follows: The main activities of the charity are to relieve the needs of those affected by DHDDS Disease, to support families affected by DHDDS mutations and drive research into them. We achieve this by providing the latest information on the condition to families and health professionals, providing funds for further scientific research and raising awareness of the disease. Our analysis found no significant governance concerns for CURE DHDDS. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 52.5% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £131,495 | £69,071 | 53% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026