CILIOPATHY ALLIANCE

Registration #1148034 · Registered

www.ciliopathyalliance.org

fiona.copeland@stonac.co.uk

INSTITUTE OF CHILD HEALTH 30 GUILDFORD STREET WC1N 1EH

72
out of 100
Verified

Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.

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About CILIOPATHY ALLIANCE

CILIOPATHY ALLIANCE is a registered charity in England and Wales (registration number 1148034). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 72/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2021), CILIOPATHY ALLIANCE reported a total income of £24,148 and total expenditure of £357, a spending ratio of 1% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, CILIOPATHY ALLIANCE describes its activities as follows: Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management. Our analysis found no significant governance concerns for CILIOPATHY ALLIANCE. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health10 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 1.5% of income spent on charitable work

YearIncomeSpendingRatio
2021£24,148£3571%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026