CDKL5 UK

About CDKL5 UK

CDKL5 UK is a registered charity in England and Wales (registration number 1207922). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 67/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. In its most recent reporting year (2025), CDKL5 UK reported a total income of £60,140 and total expenditure of £29,130, a spending ratio of 48% which is lower than typically expected for active charitable delivery. According to the Charity Commission register, CDKL5 UK describes its activities as follows: To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition. Our analysis found no significant governance concerns for CDKL5 UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 48.4% of income spent on charitable work