CAMBRIDGE RARE DISEASE NETWORK
Registration #1166365 · Registered
www.camraredisease.orginfo@camraredisease.org
B C S 5 Station Court CB22 5NE
CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.
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About CAMBRIDGE RARE DISEASE NETWORK
CAMBRIDGE RARE DISEASE NETWORK is a registered charity in England and Wales (registration number 1166365). Based on official Charity Commission data, it holds a "Verified" rating with a CharityScore of 80/100 — a well-rated and transparent charity that meets strong governance standards. This indicates a reliable charity with strong fundamentals across most of our assessment criteria. In its most recent reporting year (2024), CAMBRIDGE RARE DISEASE NETWORK reported a total income of £181,873 and total expenditure of £231,715, a spending ratio of 127% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, CAMBRIDGE RARE DISEASE NETWORK describes its activities as follows: CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research. Our analysis found no significant governance concerns for CAMBRIDGE RARE DISEASE NETWORK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 127.4% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £181,873 | £231,715 | 127% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026