ALSTROM SYNDROME EUROPE

Registration #1160362 · Registered

www.alstrom.org.uk

catherine.lewis@alstrom.org.uk

4 St. Kitts Close TORQUAY TQ2 7GD

62
out of 100
Good Standing

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

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About ALSTROM SYNDROME EUROPE

ALSTROM SYNDROME EUROPE is a registered charity in England and Wales (registration number 1160362). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 62/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. No financial data has been submitted to the Charity Commission for ALSTROM SYNDROME EUROPE, which may indicate the charity's income falls below the filing threshold, or that returns have not been submitted. According to the Charity Commission register, ALSTROM SYNDROME EUROPE describes its activities as follows: Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups. Our analysis identified 1 minor governance flag for ALSTROM SYNDROME EUROPE. No critical or high-severity concerns were found. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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⚠️ Red Flags (1)

Low
Transparency: No financial data available

Score Breakdown

Trustees & Governance25 / 25
Financial Health0 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026