ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS
Registration #1133182 · Registered
www.naadvocacy.orgginger@naadvocacy.org
Flat 39 Coleherne Court SW5 0DN
Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.
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About ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS
ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS is a registered charity in England and Wales (registration number 1133182). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 87/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS reported a total income of £70,666 and total expenditure of £47,275, a spending ratio of 67% suggesting a reasonable but not exceptional allocation to charitable activities. According to the Charity Commission register, ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS describes its activities as follows: Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases. Our analysis found no significant governance concerns for ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 66.9% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £70,666 | £47,275 | 67% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026