ACTION FOR BPAN

Registration #1210529 · Registered

www.actionforbpan.com

engage@actionforbpan.co.uk

WESTFIELD LODGE OLD MILL LANE SL6 2BG

40
out of 100
Needs Review

Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN.

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About ACTION FOR BPAN

ACTION FOR BPAN is a registered charity in England and Wales (registration number 1210529). Based on official Charity Commission data, it holds a "Needs Review" rating with a CharityScore of 40/100 — a charity with several areas that warrant further review before donating. This score suggests several areas of concern that donors should investigate before giving. No financial data has been submitted to the Charity Commission for ACTION FOR BPAN, which may indicate the charity's income falls below the filing threshold, or that returns have not been submitted. According to the Charity Commission register, ACTION FOR BPAN describes its activities as follows: Action for BPAN supports individuals with BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a rare neurodegenerative disorder. We fundraise for research, raise awareness, and provide support to families affected by BPAN. Based in the UK and operating globally, we collaborate with medical professionals and communities to improve lives and advance treatments and cures for BPAN. Our analysis identified 1 minor governance flag for ACTION FOR BPAN. No critical or high-severity concerns were found. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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⚠️ Red Flags (1)

Low
Transparency: No financial data available

Score Breakdown

Trustees & Governance20 / 25
Financial Health0 / 25
Filing History & Transparency20 / 30
Regulatory Standing0 / 10

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026