THE OSTEOPETROSIS SUPPORT TRUST
Registration #1013052 · Registered
Www.osteopetrosis-support-trust.org.ukinfo@osteopetrosis-support-trust.org.uk
Blue Haze Notch Road GL7 7JU
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
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Score Breakdown
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026