Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.
Are you from TOFS? Upgrade to a Pro Profile to add your logo, description, and a direct donate button.

Want a detailed Benchmark Report for TOFS?
Get a 4-page PDF report comparing this charity to similar organisations — including trustee count, spending ratio, income benchmarks, a live website audit, and personalised recommendations for improving visibility and score.
Request Free ReportScore Breakdown
Financial History
Latest spending ratio: 85.3% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £222,536 | £189,716 | 85% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026