XLH UK

Registration #1196811 · Registered

https://xlhuk.org/

contact@xlhuk.org

61A Bridge Street KINGTON HR5 3DJ

70
out of 100
Verified

XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health10 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 119.4% of income spent on charitable work

YearIncomeSpendingRatio
2025£13,252£15,824119%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026