THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO

Registration #1186647 · Registered

www.smith-magenis.org

contact@smith-magenis.co.uk

61 High Street PEWSEY SN9 5AF

88
out of 100
Platinum

We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health23 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 103.8% of income spent on charitable work

YearIncomeSpendingRatio
2024£81,579£84,648104%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026