TIMOTHY SYNDROME ALLIANCE (TSA)

Registration #1185523 · Registered

www.timothysyndrome.org

sophie@timothysyndrome.org

8 Butt Street Minchinhampton GL6 9JP

90
out of 100
Platinum

Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health25 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 62.8% of income spent on charitable work

YearIncomeSpendingRatio
2025£205,304£128,99663%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026