BARDET-BIEDL SYNDROME UK (BBS UK)

Registration #1181244 · Registered

www.bbsuk.org.uk

admin@bbsuk.org.uk

43 BALTON WAY HARWICH CO12 4UP

95
out of 100
Platinum

BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health25 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 74.5% of income spent on charitable work

YearIncomeSpendingRatio
2025£395,748£294,67674%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026