ALSTROM SYNDROME EUROPE
Registration #1160362 · Registered
www.alstrom.org.ukcatherine.lewis@alstrom.org.uk
4 St. Kitts Close TORQUAY TQ2 7GD
Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.
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Score Breakdown
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026