CILIOPATHY ALLIANCE

Registration #1148034 · Registered

www.ciliopathyalliance.org

fiona.copeland@stonac.co.uk

INSTITUTE OF CHILD HEALTH 30 GUILDFORD STREET WC1N 1EH

72
out of 100
Verified

Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health10 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 1.5% of income spent on charitable work

YearIncomeSpendingRatio
2021£24,148£3571%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026