THE HEATON - ELLIS TRUST

Registration #1126534 · Registered

Swanee River Ltd Summertown Pavilion OX2 7LG

85
out of 100
Platinum

The Trust was set up to help extinguish Motor Neurone Disease (MND) for which there is no specific test or effective treatment. The goal for the MND gene-hunting programme is to discover all the genes responsible for causing MND. Once achieved drugs can be screened that can arrest and even reverse motor neurone degeneration. Funds raised by the trust will help to fund the gene-hunting initiative.

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Score Breakdown

Trustees & Governance20 / 25
Financial Health25 / 25
Filing History & Transparency15 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 79.8% of income spent on charitable work

YearIncomeSpendingRatio
2025£153,052£122,17480%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026